Sunday, November 25, 2012

Thanksgiving and Upcomming Appointment

We have so much to give thanks for this year. It's pretty easy to understand how overwhelmingly thankful our families are for the blessings 2012 brought us. I'm thankful for EACH and EVERY thing that has happened in the last year. I often don't feel worthy of having so many wonderful blessings in my life! Blaise brings us unexplainable joy every single day. Our lives have completely changed. Of course, for any new parent their life greatly changes. However, it's hard to describe or even explain how your life changes when you have a child with a chronic health issue. We will never be the same. In good ways, and also in sad ways.

We are so thankful for our families. They've cried with us, laughed with us, supported us and dropped everything in their lives to be by our sides and do whatever it takes. Mothers who've quit jobs to babysit full time, sisters who've rearranged bachelorette party's due to upcoming surgeries, parents and aunts and uncles that have sat for hours on end and babysat for us in the hospital- this is just where the list begins. They continue to drop everything to help where needed, and understand and help us to keep Blaise away from the public.

Our friends- who've put up with us and stayed by our side as we've "disappeared" this past year. They continue to make us feel involved even though we've had to cancel on more than one time and haven't kept up on phone calls and keeping in touch. Your prayers for Blaise and our family have sustained us.

Our communities and all friends and acquaintances who've prayed non-stop. We can only hope that you feel the same sense of a miracle right before your eyes through Blaise. We know he's taught so many so much, and hopefully you hug your own child tighter, say I love you more and have a deeper relationship with God because of him.

Our employeers/ coworkers. Thanks for picking up the slack, putting up with our lack of schedules and for your constant support. Words can't thank enough.
I've often wondered how to say thank you to Dr. Hammel and the other doctors and nurses who've we come in contact with in the past year. Our ultrasound tech who immediately picked up on his disorder. Dr. Danford- our cardiologist who had to "gently" inform of us the most heartbreaking news we've experienced in this lifetime- but also has gotten to share in each joy and miracle along the way. Our nurses who've provided better care than I could dream of myself and also were rocks for Mike and I during some of the hardest times.  Dr. Hammel- our heart surgeon whose hands have done God's work and saved our baby's life twice. How do you ever go about thanking someone like this? I'm hoping just the joy and smile on all of our faces when we see him explains it enough. It's almost like he feels part of the family.

We are thankful for the new relationships we've made. Some of the most incredible people dealing with similar health complications with their children. Some who've lost children, some who share tips and tidbits and those who are there no matter what.

We go back this Friday, November 30th for our cardiologist appointment. Blaise is scheduled for a ECHO, EKG, all other regular testings and a genetic blood draw. I swear these appointments get harder each time. This is the first time since August that they will be looking at his newly structured heart. As before, we are asking all our prayer warriors to send along extra prayers this week for great news on Friday. I'll update as soon as I can after the appointment. We hope that Blaise handles everything well. It will be hard to watch his scream as blood is drawn, and hold him down for over 20 minutes during the ECHO. Mike and I are going together, so hopefully the two of us can handle it all.

What's Blaise been up to since the last update? LOTS! He has spent a lot of time and Grandma and Grandpa Sudmann's. He went to visit his cousins and aunt and uncle in Aberdeen for Cooper's 2nd birthday. This was Blaise's first long road trip, as its about 6 hours one way. We left late enough that he slept the whole way there, except for about a 20 minute scream session, and I think our passenger Uncle Tyler was about ready to jump ship. He also did really well on the way home. I think Blaise was beyond entertained by his cousins, and may have learned a thing or two- as he now likes to scream as loud as he can throughout the day.

Blaise spent Thanksgiving in Treynor and even got to eat a Turkey Dinner (out of a baby food jar). Aunt Jenna made him a super cute turkey shirt and he looked adorable in it! Great Grandpa Glenn was back- so Blaise got to spent some time with him this weekend. We are very deep in teething at the moment. Blaise has decided he doesn't like sleeping at night and wakes up quite a few times. I'm beginning to think it's teething related. He can't get enough things in his mouth, and he is a drool monster. On Friday night he was super fussy and actually ran a temperature of about 100.6 that evening. Of course, as a heart mom, I immediately got nervous and called the pediatrician to make sure they thought everything was okay. After some tylenol it came down, but his fussiness has continued. Mike hung outdoor lights this weekend on our house. I am SOOOOOOOO excited to celebrate the Christmas season with Blaise! Don't forget the reason for the season!

Here are some fun pictures to enjoy!

Hartwell Family Photos in Aberdeen
 Sound asleep on the floor when I visited Uncle Mitch and Aunt Jenna.
 Anxiously watching the election results with mommy.
 Getting a piggy back ride from daddy!
 Hands up- I'm OUT!
 I was SEVEN months old on the 12th!
 I sit up all the time now!
 Playing with Uncle Adam.
 I don't need Christmas presents- just get me the box!
 Love my daddy!
 Being a good boy on the long car ride up to Aberdeen.
 Man- this is a LONG car ride home!
 I can stand all the time too! Happy Thanksgiving!
 Cutest butterball around!
This teether thing is awesome!

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