Post op day two

Last night was a pretty rough night for Blaise with lots of vomiting. A main source of this is taking one of his diuretic medicines orally. They tried to dose it twice, both times coming up before they gave up. Poor baby was up until about 4 am. Thankfully our awesome nurse was able to get him to take this med around 9 am when mixed with apple juice. At rounds this morning we learned there is a pocket of air on his lungs that developed. They re X-ray at 4 Pm, and it looks like it resolved. To help this, they hooked up suction to two more of his drain tubes. His kidney levels are little bit high, we will look again at those numbers in the morning. The biggest things they wanted to day were to get up walking and improve his appetite.

He walked a total of four times today!! Each one a little bit further. Seriously, this kid is unbelievable. I love him to pieces. The first time he was up he got to kick a soccer ball at bowling ball pins a few times. Then on our first walk he took suction cup toys and stuck them to the outside glass doors of the patient rooms as we walked past. He sat in his chair quite a few times. He was able to put on underwear and shorts today, I think that helped him feel a bit more human.

Tonight we tried to change his most hated medicine to pill form in applesauce. Little pistol sorted it right out and spit the pill out. We finally got him to get it down. It's totally a mental case right now with him and freaking out about taking medicine after last nights episodes. This is probably one of our bigger prayer requests right now, is that taking medicine isn't so stressful and lots easier for him. Right now, it's almost an hour episode of us doing everything we can think of to get it down.

Other things that happened today were getting rid of his heparin since he's up walking and his other ART line went bad. So instead of doing his blood draws from his line, they now have to do an actual blood draw stick with needle in his arm each time. A funny line from Blaise today is that when they got done pulling the line out of his chest and Blaise saw how long it was he said "well no wonder that hurt!"

Another request is the increase in food intake. He has eaten about half of a mandarin orange fruit cup for supper and 4 bites of scrambled eggs.

The good news at 9 pm rounds was that they are going to try and finally let Blaise get some sleep tonight by only waking him up every 4 hours. Tonight is Mikes turn to stay.

They haven't said it yet, but we are really really hoping to get out of the PICU and up to the 5th floor soon. There is a video I posted earlier on Facebook of Blaise walking. Can't quite figure out how to get it on the blog yet.


Pink lips and toes for the first time EVER

Removing incision dressing