Hard to believe we’ve been on this journey for ten years now. (When I was still pregnant.) By now most everything has changed. His cardiologist Dr danford retired. His surgeon Dr Hammel moved away. His nurse Jenny switched departments, a new hospital has been built. Blaise had his full blown cardiology appointment this morning at Children’s. Since he’s getting older, and we are getting further out from his Fontan surgery, his Cardiologist is now wanting to run more tests and check more things out. Things can start to arise as his modified heart works twice as hard. This could be leaky valves, blood pressure issues, arrhythmia and basically anything else. We are also starting to do blood work tests for heart function, liver enzymes to look for liver failure as that’s one of the most common complications for post-Fontan kids. We also added in wearing a 24- hour holter monitor last week and had his normal echo this morning. It’s been a lot if testing for a kid who hasn’t enjoyed it. He’s also at an age where he understands the depths of what all this means and how important good results are.
Blaise passed everything with flying colors today. All tests, blood work etc came back fine. For the first time he has a one year pass til his next visit. As I told the three doctors in his room today, the past ten year journey has been one that would have been impossible to wrap my head around ten years ago. The highs, lows, daily stress, unknowns. One thing through it all has been Gods incredible blessings He’s given Blaise. We thank God EVERY day.
Thanks to our "community" for your continued prayers.
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