Home!

First, my apologies for not getting an update sooner!! The past few days have been a whirl-wind! Here’s the Wednesday post from noon on Facebook! We were discharged!! 

Blessed. Overwhelmed. We are on our way HOME! There are overachievers, and then there is Blaise. We could have never imagined how quickly and amazing Blaise would do. Our discharge papers list his oxygen saturation’s as 99- After living his life in the 80’s and 50-60 with exercise. 😭 We can’t thank you enough for the prayers- it’s what’s gotten us here!

"Lord! I’m bursting with joy over what you’ve done for me! My lips are full of perpetual praise. I’m boasting of you and all your works, so let all who are discouraged take heart. Join me, everyone! Let’s praise the Lord together. Let’s make him famous! Let’s make his name glorious to all. "

So, we got home around 1, picked up the other two kids and were hanging out enjoying our family time. We worked outside a bit pulling some weeds and headed inside around 4. Blaise went to lay on couch and as I covered him up, thought he felt warm. We were consistently getting temp readings between 99.5 and 100.5. Granted I totally get on a normal healthy kid this isn’t even a temp, but on a kid 7 days post-open heart surgery I got concerned. I made a phone call to the on-call cardio who said to monitor it and watch for changes in breathing, activity, etc. We ate supper and around 7, his temp was 102.6. I decided we probably should head to Omaha to have him checked out, so about six hours st home and we headed to the ER. Poor Blaise was hysterical freaking out not wanting to go back there, not sure what was going to happen. Sutton was so worried sobbing. My parents met us at Chikdrens and took the little two home. After a full rundown of more x Ray, blood work, urine sample, they decided his CRP level was elevated, which is basically the bodies inflammation, and they said not uncommon after his surgery. We finally made it home at midnight and still spent the first night in our beds. Thursday was the same fever running from 99.5-101. Mike went trucking to Illinois Thursday night leaving a very nervous me home with the kids. Friday morning was the same with Blaise’s fevers, so I thought I better make a call to cardio before the long weekend. They decided they better see us, so back down yesterday afternoon. Another X-ray, more blood work. The blood work shows his white blood cells trending down, so they don’t think an infection. His CRP level went up again from Wednesday night, but I guess not enough to be concerned. His potassium is a bit off. His X-ray showed even more "junk" on his left lung from even Wednesday night. Dr Hammel’s PA Hollie who saw us feels pretty convinced that what is showing up in the X-ray is not actually fluid but just junk. She thinks Blaise caught a virus while in the hospital causing the fevers and junk. We headed home, hoping this is true. He acts fine, breathing fine, his saturation’s are always 95 or better, appetite good. 

Today has been much the same with temps. Mike left at noon for West Virginia until Tuesday morning. Im hoping tomorrow is the day these fevers move on and I’m not so on edge!

We did get the chance to visit Papa and monna camping over at blue lake! We needed some relaxing time!